eligibility

For men to participate in the Prostate Cancer Outcomes Registry – Australia & New Zealand (PCOR-ANZ) they must:

• Be aged 18 years or over;
• Have a current or previous diagnosis of prostate cancer; and
• Have been diagnosed or treated for prostate cancer in a participating hospital.

To find out if your hospital is participating in PCOR-ANZ , please visit the Participating Sites tab.

participation and consent

If you have recently been diagnosed with prostate cancer, your hospital will send a notification of your diagnosis to your state Cancer Registry. If your hospital (or doctor) is participating in PCOR-ANZ, you will receive an information sheet about PCOR-ANZ, along with a letter of invitation to participate.

If provide consent to participate in PCOR-ANZ, your personal and medical details will be collected and entered into PCOR-ANZ. Participation is voluntary and you can leave the registry at any time (see “Opting Off the Registry” section below) without affecting the treatment or care provided to you.

information collected

The following information about you will be collected:

• Name and date of birth
• Address, living status and contact details
• Diagnosis and treatment details
• Details of your current health status (quality of life collected via the EPIC 26 questionnaire at 12 and 24 months post last active treatment).

The information and details collected about you for PCOR-ANZ  will never be released and only used for research purposes.